Victory! 4/25/24
Journeigh had her fourth surgery today and everything went as planned if not better! Her oldest sister NaBrà also accomplished her goal...
top of page
Search
boo413003
- Jan 30
- 1 min
Infamous 4th birthday!
As we get the foundational gears turning, our main misson is based on Journeigh and her advantageous walk within her dual diagnosis of...
11 views0 comments
boo413003
- Dec 23, 2023
- 2 min
The best Christmas presents…
Yippee! The time is almost near , just a few short hours until Christmas, as we gather with friends and family to celebrate and enjoy...
11 views0 comments
boo413003
- Dec 10, 2023
- 1 min
All things auditory
Audiotory Health with Down Syndrome and Autism Yearly or bi-annual checkups are key with your primary care physicians for children with...
9 views0 comments
boo413003
- Dec 4, 2023
- 1 min
IEP Meeting
My upmost respect goes out to the teachers, educational therapists, faculty and staff first and foremost. The impact is exemplary! When...
12 views0 comments
boo413003
- Nov 21, 2023
- 1 min
Suggestions for a thorough IEP meeting
Learning how to effectively communicate with your child's educational support system is key. Here are some of the questions I will be...
16 views0 comments
boo413003
- Nov 18, 2023
- 1 min
What an Autism diagnosis actually looks like
11/15/23 the infamous appointment that I was eager to get down to the real meaning of what Austism looks like in a combined diagnosis...
25 views0 comments
boo413003
- Nov 12, 2023
- 2 min
What is Austism?
Austism(ASD) Austism Spectrum Disorder is a neurological and developmental disorder that affects how people interact with others which...
35 views2 comments
boo413003
- Oct 31, 2023
- 0 min
25 views2 comments
boo413003
- Oct 28, 2023
- 1 min
Down Syndrome Resilience part 4. Having a support system
Throughout the first several months of Journeigh's life with two major successful surgeries behind us, my immediate family were my...
23 views0 comments
boo413003
- Oct 10, 2023
- 2 min
Down Syndrome’s resilience-part-3
As the medical team prepares for what's called an Ostomy better known as a Colostomy in Journeigh's condition (removing a segment of the...
14 views0 comments
boo413003
- Oct 4, 2023
- 1 min
Untitled
https://www.ds-stride.org/delawaredswalk/profiles/registrant/4113?fbclid=IwAR3y4eyKmxY1yIk8M_jrXINUSd7xe4k6peiOMXh5ZL1Fq1u4cTY-escR_mY...
9 views0 comments
boo413003
- Oct 2, 2023
- 2 min
Down Syndrome’s resilience - part two.
It takes a special team to show compassion during any medical emergency, the emergency medical team was highly skilled and knowledgeable...
21 views0 comments
boo413003
- Sep 28, 2023
- 2 min
Down Syndrome’s resilience —part one
Each and everyday day we can become challenged with different medical issues and concerns for our children, but it seems to amaze me on...
19 views0 comments
boo413003
- Sep 26, 2023
- 1 min
New Beginnings with Journeigh
On 7/1/2019 Getting the delightful news of "expecting." At the five month mark into the pregnancy, the prenatal team offered me a NIPT...
18 views0 comments
United to Empower, Advocate and Support children and families who face daily obstacles with being dually diagnosed with Down Syndrome and Autism that relates to the continual support of additional medical, social, educational, and financial resources .
bottom of page